Відео

It's a struggle trying to get help with this. People to believe that you're sick. I drink lots of water and Propel and put salt under my tongue but I still get pretty sick and then they're like oh but your levels are good

Can I ask you to get in touch please. I too was told to take Xanax I have been my own advocate for a healthy lifestyle with Addisons ! I would love to better understand what we can do to advocate for others. Spread awareness.

Diagnosed about 15 years ago and aside from longer stays when accidents happen I learned to listen to my body and I am proud to meet another advocate. How can I help as I have felt my story needed to be heard.

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I’m waiting for my blood results bc I might have it :/

I have addisons and it so hard some days to get out of bed.

that first dr u saw needs to be told his mistake so he doesnt keep doing the same thing... drs are never held to account!

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Thank you for this video. I was just diagnosed today with Addison's disease. I also have Multiple Sclerosis so the fatigue was unreal. At first, I was so confused and shocked it up to my MS but deep down I knew something was not right and felt different especially my 80/53. Thanks again for this video!Jesus saves lives, prayers sent your way... 🙏 🙌

I love that you include Our LORD JESUS CHRIST! You have made me smile! God bless brother!

my doctor said i'm young and healthy. that it's psychosomatic. my intuition KNOWS something is really wrong. i can always trust it. i'm here in the internet trying to find out what it is, but i know that i can't.

I have had it since I was 13 years old. Did not find out until I was 38 and the level of cortisol was 1. The Lord Jesus kept me from dying young and now I have a great family.

As a current nursing student I wanted to share that this disease is covered over and over again, its on so many exams and boards. I'm just so shocked that such a heavily taught/studied disease was missed by so many medical professionals around you.

Well, you said it right Coca-Cola actually is bad for people but it’s made out to be so good and the children are having Coca-Cola and knowing about it from so far away but yet something so important to say peoples life needs to be known about like Addison’s disease it’s just a shame that it’s not being known more and talk more how to helppeople with such a critical condition

Yes, it needs to be out there and it needs to be taught more to these doctors how to treat us that have Addison’s I found out I had Addison’s just six months ago and it’s a living hell I’m not on any medication there needs to be more doctors out there educated to help us so I am so glad. Hopefully it will be more and more be taught and learnt so that we can get the help we need and save lives.😪

Ty. Thanks so much for your story

Why doesn't anyone take tests? Its lazy. When did doctors become so Lazy? To not order simple tests that they don't even have to take the lab tests for? I mean seriously type a blood test on a computer is TOO HARD for them to not just diagnose so thing they just get a REPORT FOR? They don't even have to do the tests or look under a scope? That's why I say a nurse practitioner. They understand if you have severe lethargy there is a problem. So sick of malpractice with LAZY DOCTORS. Who think everyone had anxiety. SICK of it.

Thank you for sharing 🙏 your story is just like mine. I was an Rn for 25 years, now disabled because of this, and a car accident which after 4.5 years led to my diagnosis of Addison’s. I’m disgusted by the medical profession, and how they treat people with invisible diseases. I basically diagnosed myself and had to fight to be finally tested. After multiple hospital visits for what I now know were crises. I also just spent a month in the ICU and then a week on the medical floor, for a major medical emergency, and they didn’t understand Addison’s at all. It was a nightmare. Again, thank you for sharing your story! We need to be our own advocates, and even though we don’t have the energy, we have to use every bit we have to make sure the medical community understands what we have and need.

The medication that you’re on how long have you been on it now and is it helping you with energy? Can you function in a normal life now?

I got Addison‘s disease I was towed in the hospital but I’m not on any medication and I don’t understand how much longer I can handle being exhausted anymore. I got another month before I see a doctor, but I’ve been trying to survive without medication and it’s not easy. It’s horrible every day. I’m so exhausted. It’s terrible, I don’t know what’s gonna happen but I pray that God will help me so when I see my doctor I’m gonna let her know. I am very exhausted. I can’t function. Every day is turn my life upside down but I’m so happy you survived. I pray I survived too.

Thank you for sharing your story, and for your testimony. Praise God for your healing!

I would imagine daily caffeine intake would not be good for this condition.

You are a good person. I am glad you are still living with our Heavenly Father.

A little more than a year ago, my eldest child, my daughter, passed away from "complications due to Addison's", she had just turned 27 a week prior. She had 6 years previously had her first adrenal crisis but was effectively rescued from the crisis. My daughter's Addison's was due to my CAH condition.

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Its incredible how bad doctors are at certain things. You had hallmark signs of addisons and they didn't even think about that. Cortisol should always be tested in the ER probably alot of people die undiagnosed there.

Deeply appreciate this vdo. Thanku 🙏👍.God Bless 🌹

Amen, Levi! My story down to missing slot - a huge deal for a TV reporter. 3 little pills a day make a huge difference. About that - more to come when I can use a computer and give you the whole story. Including one endo who swore my Addison’s was cured. (Spoiler alert: it wasn’t) Jim

Your story is the same as mine and my sons 😭 it’s the worst being dismissed. I had to watch my 10 year old fight for his life and it really is the grace of God we are both alive. We both went through adrenal crisis only a couple months apart. I somehow survived it, being dismissed by my doctor with severe anxiety. My son, who was dismissed with a viral infection, thank God made it to an amazing hospital and they caught it quick enough to deal with it as he was in crisis. He’s currently in the hospital recovering. And I love that you’re glorifying God through this! Jesus really is the only one we can hang on to.

I was diagnosed with a series of illnesses one after the other: hypothyroidism at @25 Hashimotos @30 Diabetes @33 Addisons @36 My body is like a rag doll extreme fatigue, weaknes,muscle weakness, exhaustion I function 20% of the time I don’t know what to do anymore 😢

I just got diagnosed with Addison's Disease a month ago after being in and out of the hospital for the past 4 years. I have had 3 near death experiences in the last 6 months and have lost an extreme amount of weight (causing me to be diagnosed with unintentional anorexia.) It is so relieving to finally have an answer and I am grateful to be alive. Listening to your story made me feel less alone and showed me that I have so much more time to my life than I thought I did! thank you (:

I already hear the voice of God. I went on a missions trip to Mexico and we stayed on a Ywam based and it was nice and we got to meet some of the students who were just finishing up. A few courses sounded interesting and what I am craving for and something to set myself aside for a time.

Thank you! Your story is so similar to mine! I finally know what I need to talk to my doctor about. I know the Lord lead me to this video. Bless you!

I have adrenal insufficiency and Addison's and it's very tough but your not alone ... I had my thyroid taken out. This autoimmune disease is rough . I wish I was normal

Thanks for posting. I have had Addison’s for nearly 27 years now. I have found that diet is extremely important and the older I’ve got, the less tolerant I have become to grains, wholemeal and that kind of stuff. It is without question highly beneficial to focus mainly on meat starchy vegetables and eggs. I’ve managed to retain my levels of fitness the whole time and still, at the age of 45 can do 20 consecutive pullups and 100 consecutive push ups (not to brag) so hopefully it’s doing something right! 😉

Pulling over and sleeping in petrol stations and rest areas was my life for a couple of years before diagnosis. I was primarily diagnosed by my VET! I took my German Shepherd (called Monkey) for a check up and I was wearing layers of jumpers and jackets because I was so cold all the time. Apparently I looked totally washed out. He asked me if I had other symptoms and we made a list. He told me that is wasn’t actually cold and that my body was failing to regulate its temperature which could all be linked to all the other issues and he had a hunch he knew what it was. He suggested I ask my Dr for a Synacthen test and when I did get the test I had a diagnosis within 8 hours. That was 8 hours after 3 years of seeing Drs who would roll their eyes and tell me everyone suffered fatigue and I probably wasn't looking after myself or eating enough. In fact they were quite consistently dismissive. My symptoms included extreme muscle aching myalgia, falling asleep sitting upright in my office working at my computer, struggling to get out of bed in the morning, weight loss and lack of interest in food, headaches, ever increasing heart palpitations (ectopic heart beats) extreme muscle fatigue walking Monkey even on level surfaces but especially on any inclines, and of course feeling cold all the time. I played rugby until I was 50 and used a gym 3 times a week until a few years before my diagnosis but these symptoms which became more impactful as time went by put an end to that. I began to think that this must be the natural aging process because the Drs didn't have any answers and were so dismissive. Additional symptoms such as brain fog started to become the norm and loss of balance especially in the middle of the night during my many trips to the toilet. All these symptoms which I told the Drs about and none of them could add them up for a 'House" moment of writing them all on a white board and assessing them in their entirety in search of a link between them all. It took my Vet to have a 'Eureka' moment to point the medics in the right direction. So try going to your Dr and asking for a blood test to determine your blood cortisol level and a Synacthen test and see what their response is! " Visited Dr Google have we? why don't you leave it to us professionals" with a smug pat on the head and a patronising smirk. But "stick to your guns" my Vet said and he had written me an appraisal of all the symptoms and why a synacthen test was a more than reasonable approach for a diagnosis which addressed all the issues rather than in isolation. So finally the test was done and I got the call with the diagnosis and it was not so much an emotional reaction I had, as a vindication that I hadn't been making a mountain out of a molehill . A vindication of my belief that my physicians hadn't been challenging their own preconceptions and in effect misdiagnosing as a result of their own apathy and indifference. 24 hours after starting hydrocortisone tablet I felt 20 years younger. Waking up energised, full of enthusiasm and positivity. The myalgia vanished, the heart palpitations dissipated, energy levels were restored and my fatigue and malaise lessened. I felt completely transformed. Now, I hardly ever need the toilet in the night and never have dizzy spells. However, these extreme improvements did settle down and 7 months later the improvements are not quite as extreme because like recreational drugs (so I am told, because that has never been my thing), the effects lessen with time and it takes greater quantities to hit the 'highs'. However we learn to adjust doses according to our general well being and learn to listen to our bodies. I have subsequently been diagnosed the hypothyroidism and hypogonadism and have to treat them also but all in all if I treat them accordingly things are 85% back to normal which is a massive improvement. My side effects are mostly HUNGER and I have gained 10 kilos and need to manage excessive weight gain but damn I am hungry all the time! So, that's my story and I thank Levi for going to the trouble to make his excellent video to open a forum for us to all share our hopes, fears and personal stories. I am in the UK and have no issues accessing my drugs which I receive for free from the NHS (National Health Service) but it saddens me to read some posts which refer to waiting in the US to see if the medical insurance will cover your prescriptions and ongoing care. Our NHS is in crisis but when a diagnosis has been made the care is exemplary . . . . . . and when it fails to meet expectations you shout loud enough to be heard and just maybe talk to your empathetic vet!

With getting the diagnoses came a since of relief My feelings are valid all what I went through is real 😭 I felt the same when I finally got diagnosed with celiac and now I’m waiting to confirm or deny Addisons diagnoses Wish you guys all the best

Damn, you described my story, 99% of this video is my story, the only 1 dofference is that I had 108 sodium level. Everything is the same. I appreciate you shred this video.

Thanks for the video .. to explain the dts training

Iam really love this organization❤❤❤❤And wish and wanted to join this organization..

Interesting to hear your story and good to hear you giving credit to Jesus. Glory to God for being with us when we suffer and protecting us more often than we realise!

I was almost there. My doctor said I had adrenal insufficiency and that she wanted to take cortisone while I took the ACTH test and I said yes the first time but then she insisted I take cortisone until the second test. I SAID NO FREAKING WAY CHICK! I took GAIA morning and night adrenal support and it brought my adrenals back from near coma/death! I stopped all caffeine and sugar bcuz it stresses the adrenals. I changed my diet and continued with Gaia for two months (I think it was called Gaia Jump Start and there was another I took at the opposite part of the day).. with that AND JESUS, it BROUGHT MY ADRENALS BACK TO LIFE AND SAVED ME FROM HAVING TO TAKE HYDROCORTISONE FOR LIFE AND RISH BRITTLE BONE DISEASE FROM IT! Fast forward to today and I’m needing this video as a wake up call bcuz I’m nauseous out of nowhere almost on a daily and having heart irregularities and anxiety with mild random tiredness. So I am going to make those change’s permanently this time and keep up with my Endocrinologist!! PRAISE THE LORD IN ALL SITUATIONS to keep your focus on things other than your problems and HE WILL INCREASE!

It took me to nearly die to get my diagnosis. Told so many times it was a virus, anxiety. U name it the medical professionals had no idea! As TY1 diabetic of 41 yrs it’s seemed easy for them to blame that too. 5 yrs being diagnosed and several crisis. Came across your video today. Love to all that have this horrible disease! Xxx

auto immune is usually caused by leaky gut which is usually caused by food allergies, and no I don't mean the epi pen kind.

Im starting to think this is what I've been suffering from all these years from early 20's until 49 and probably longer still

Diagnosed with almost every mental health disorder and POTS, but just saw an endocrinologist and my ACTH Plasma Cortisol was low, my potassium is usually low, I crave salt, I'm miserable and I did some research and I'm both relieved and scared that this might be what's going on. I have moments like he described and I get this feeling like I'm about to die but the doctors always said I was fine....

Hi, I have secondary adrenal insufficiency due to my thyroid and pituitary not working since I was five years old.

Thanx for sharing your story with us! Unbelievable how doctors treated you before you got your diagnosis! You have the same disease as JFK. I found you cause I study naturopathy and searched for Addison to find out more about it! If I will ever meet someone with your symptoms i will remember your story and send him/ her right to the endocrinologist with the right diagnosis. With the modern steroids and meds you will have a wonderful life ahead! You are a very sweet and special person.

Thank you

Hey, in 1989 after leaving basic training in the army I had to have my adrenal glands removed, from that point in my life I started living with Addison's Disease. I'm 54 years old. I was diagnosed at Emory University Atlanta by the Mayo clinic in Atlanta wih Dr. William Borenstein. If you still have adrenal glands in your body but they are not working do not allow a surgeon to remove them. This gland can be healed and possibly still produces a small amount of cortisol and aldosterone. Too much mucus or putting bad things in the body causes the adrenals to fails. If you've been diagnosed with primary Addison's and still have your adrenals in your body take pregnenolone which is the mother of all other hormones. Pregnenolone creates all the other hormones like cortisol or progesterone through the body's different routines. It's a tough life, BUT YOU WILL SURVIVE. DO NOT LET GO OF YOUR FRIENDS AND FAMILY. Being on the medications I realize how it can affect your emotions and damage relationships from being in a bad mood. Sometimes you have to check yourself and your mood. I've never taken hydrocortisone, I've only taken Prednisone 10 mg, and Floudrocortisone. Prednisone is longer lasting. The medications can affect your mood and muscle wasting. Absolutely do your research. So trying to gain my weight back is the hardest thing. I wish all of you much love and health.